Bobby is done and back in the CICU. The surgeon said that everything went well. We hope to see Bobby around 5:00. We are in a private room so that 1 person can always sleep in the room with him. We can even use the bathroom and shower! THank you for your love, support, and prayers today. I will keep you updated as able!
Rachael
Friday, March 19, 2010
Update #1
They took Bobby back shortly after 1:00pm. We was in good spirits and did not seem too phased without being able to eat or drink. Thank goodness for the playroom which kept him occupied!! They had given him versed, but he was still excited to go down the hallway and push the buttons for the elevators. We spoke with the nurse about 10 minutes ago. She said that he went to sleep nicely. Dr. Spray did not have any trouble getting in, and he was just being put on bypass. Thank you for keeping everyone in your prayers. We know he is in the best hands-God's hands!
Rachael
Rachael
Change of Plans
A critical baby came in last night so we have been bumped to a later time. We need to arrive at CHOP at 8:30am. It was nice to sleep in until 6:00 instead of getting up at 4:00! Continuing to trust in God's plan for all of this...
Rachael
Rachael
Thursday, March 18, 2010
Tomorrow
We will be at the hospital at 5:30 am. Bobby has an MRI prior to surgery to study brain development in heart kids versus normal kids. Surgery should start around 8:00am and last for 3.5 hours. I will update as we receive information. Thank you for your kind words, thoughts, and especially prayers!
Tuesday, March 16, 2010
Happy 3rd Birthday Bobby!!
March 16 , 2010
Dear Bobby,
Three years ago I was in the midst of trying to push you out, but you just wouldn’t cooperate. Daddy had just arrived after driving 10 hours through a snowstorm to get to us. It seems hard to imagine that so much time has passed. And here you are, turning into a little boy right before our very eyes. This year has been a year of big accomplishments for you. It was your first year without ANY surgeries. We expect that we have many more surgery-free years!
Even more exciting is that your love of reading has turned into a love of learning. You already know all of your letters, numbers, colors, and shapes. Right now you are working on mastering your letter sounds. You know more than some of the students that I teach, and what makes it so special is that it is all on you. You are the one who works hard to learn these things. But actually it doesn’t take you too much time to learn anything. Many times you seem to catch on after only one or two tries. This has also made life interesting on a day-to-day basis. It seems that if we do something with you one time, you expect to do it every time. Last fall I stopped by the park on an unusually warm day on our way home from work. Well, for the next few months you insisted on going to the park every time we came home from work and got really upset when that just wasn’t possible. This past Christmas you loved going through the light show! You would say, “Oh, pretty!” and want to see the lights every night. It was also hysterical watching you get so set on opening presents during Christmas. You were ready to celebrate Christmas every day by opening presents even though we didn’t have any around. Right now you are really into lollipops and pez candy. We use them as a distraction in the car and stores, when you don’t like to be seated for too long! You love to be on the go all of the time, whether it be to go on walks, shopping, or to your friends’ houses.
This August you became a big brother to Brogan. Although you were a little jealous at first and wanting my attention, it didn’t take you too long to get over it. Now you are a doting big brother. You look out for Brogan at Doris’ house and let her know whenever he is crying. You even make sure that we know when Brogan needs a bottle, binky, or blanket. You love to play with him, lay on top of him, and make him laugh. It is so obvious in his eyes how much he adores you. I love how the two of you play off of each other.
The most exciting thing for me this year has been your language development. I am not sure where you come up with half of the things you say, but you have me in stitches so much of the time. Just today you told me that I was old! And you love to push buttons, but when you first started asking us to push them you would say, “Push the butt, Mommy.” You also love to talk on the phone and imitate everything I say. You are quite the character, Bobby Weeks!
You are so special to so many people. I think that anyone who has been lucky to meet you is drawn to your charisma and will always remember you. Maybe I am biased, but that is my job. You just had an amazing birthday party at Airheads. 13 of your friends and their parents, Grammy, Jamie, Doris, Brogan, Mommy, and Daddy were there to celebrate. You had so much fun jumping, running around, playing with the trains and legos, that you didn’t even want to stop to eat or open presents. Today on your birthday you were ready to go back to your birthday party. You insisted on wearing your Blues Clues pajamas and cried when we didn’t stop at Airheads on our way to work. “My party,” you cried and even through your Leapfrog game at me! On our way home from work you told me that we were almost there, close to the party.
Bobby Weeks, it is such a joy and honor to be your mother. You have taught me how to live life to the fullest. But even more importantly, you have taught me how to be strong and stay focused on the most important things in life. I love you so much and would do anything and everything for you. One thing that has me a little down today is that we have your 3rd open heart surgery hanging over our heads. It is set for this Friday, March 19th. Can you believe that it is 3 years to the date of your first open heart surgery? God definitely is taking care of you and we have completely placed you in His hands! We know that He will guide the surgeons, doctors, and nurses taking care of you. We also know that He has given you a fighting spirit to help you get through this.
Happy 3rd birthday, Bobby! We can wait to celebrate the next birthday!
Love,
Mommy
Dear Bobby,
Three years ago I was in the midst of trying to push you out, but you just wouldn’t cooperate. Daddy had just arrived after driving 10 hours through a snowstorm to get to us. It seems hard to imagine that so much time has passed. And here you are, turning into a little boy right before our very eyes. This year has been a year of big accomplishments for you. It was your first year without ANY surgeries. We expect that we have many more surgery-free years!
Even more exciting is that your love of reading has turned into a love of learning. You already know all of your letters, numbers, colors, and shapes. Right now you are working on mastering your letter sounds. You know more than some of the students that I teach, and what makes it so special is that it is all on you. You are the one who works hard to learn these things. But actually it doesn’t take you too much time to learn anything. Many times you seem to catch on after only one or two tries. This has also made life interesting on a day-to-day basis. It seems that if we do something with you one time, you expect to do it every time. Last fall I stopped by the park on an unusually warm day on our way home from work. Well, for the next few months you insisted on going to the park every time we came home from work and got really upset when that just wasn’t possible. This past Christmas you loved going through the light show! You would say, “Oh, pretty!” and want to see the lights every night. It was also hysterical watching you get so set on opening presents during Christmas. You were ready to celebrate Christmas every day by opening presents even though we didn’t have any around. Right now you are really into lollipops and pez candy. We use them as a distraction in the car and stores, when you don’t like to be seated for too long! You love to be on the go all of the time, whether it be to go on walks, shopping, or to your friends’ houses.
This August you became a big brother to Brogan. Although you were a little jealous at first and wanting my attention, it didn’t take you too long to get over it. Now you are a doting big brother. You look out for Brogan at Doris’ house and let her know whenever he is crying. You even make sure that we know when Brogan needs a bottle, binky, or blanket. You love to play with him, lay on top of him, and make him laugh. It is so obvious in his eyes how much he adores you. I love how the two of you play off of each other.
The most exciting thing for me this year has been your language development. I am not sure where you come up with half of the things you say, but you have me in stitches so much of the time. Just today you told me that I was old! And you love to push buttons, but when you first started asking us to push them you would say, “Push the butt, Mommy.” You also love to talk on the phone and imitate everything I say. You are quite the character, Bobby Weeks!
You are so special to so many people. I think that anyone who has been lucky to meet you is drawn to your charisma and will always remember you. Maybe I am biased, but that is my job. You just had an amazing birthday party at Airheads. 13 of your friends and their parents, Grammy, Jamie, Doris, Brogan, Mommy, and Daddy were there to celebrate. You had so much fun jumping, running around, playing with the trains and legos, that you didn’t even want to stop to eat or open presents. Today on your birthday you were ready to go back to your birthday party. You insisted on wearing your Blues Clues pajamas and cried when we didn’t stop at Airheads on our way to work. “My party,” you cried and even through your Leapfrog game at me! On our way home from work you told me that we were almost there, close to the party.
Bobby Weeks, it is such a joy and honor to be your mother. You have taught me how to live life to the fullest. But even more importantly, you have taught me how to be strong and stay focused on the most important things in life. I love you so much and would do anything and everything for you. One thing that has me a little down today is that we have your 3rd open heart surgery hanging over our heads. It is set for this Friday, March 19th. Can you believe that it is 3 years to the date of your first open heart surgery? God definitely is taking care of you and we have completely placed you in His hands! We know that He will guide the surgeons, doctors, and nurses taking care of you. We also know that He has given you a fighting spirit to help you get through this.
Happy 3rd birthday, Bobby! We can wait to celebrate the next birthday!
Love,
Mommy
Tuesday, March 9, 2010
March 19, 2010
Bobby will be having his 3rd open heart surgery. This is exactly 3 years to the day of his first open heart surgery on March 19, 2007. We know it is coming up way too quickly, but trust that God's timing is perfect. Today Bobby had an echo and cardiologist visit. Tomorrow he is scheduled for a pre-op visit and MRI. I will share more when we get home. Thanks for adding Bobby to your prayer list!! This is scary for him and hard on us. Heart Hugs!
Tuesday, February 16, 2010
Keeping Life Interesting...
Just a short little message to ask for some prayers...
Bobby and Brogan have been fighting a nasty bug that gave them severe ear infections and colds, and has also affected Brogan's lungs. He has been on nebulizer treatments, but that didn't do the trick so he just started steroids today. We pray that they are on the mend soon. On Saturday, the pediatrician mentioned that he is concerned about Brogan's head. He is worried that the skull sutures are fusing too early (craniosynostosis). On Monday we have an appointment with a plastic surgeon. These are the same guys we had to see for Bobby's head, although we know his problems were more to due with his traumatic delivery. I am not going to lie, the thought of head surgery for Brogan makes me sick! My first thought was why us? Don't we have enough to deal with since Bobby has had 2 open heart surgeries and a third one slated for the summer? I was angry and bitter and feeling sorry for myself and our family. After prayer and reflection, I am working on a change of heart. We are a strong family, and with God on our side we can conquer everything! We are just going to take this one day at a time, and if it comes to surgery for Brogan, ultimately he is in God's hands and we will be there comforting him and helping him fight through. So, if you could just add these prayers to your lists, we would feel honored. If we do indeed have another battle in our future, we need your support along with our Heavenly Father's to get us through. Feel free to pass this along...any and all prayer chains are blessings.
Heart Hugs!
Rachael
Bobby and Brogan have been fighting a nasty bug that gave them severe ear infections and colds, and has also affected Brogan's lungs. He has been on nebulizer treatments, but that didn't do the trick so he just started steroids today. We pray that they are on the mend soon. On Saturday, the pediatrician mentioned that he is concerned about Brogan's head. He is worried that the skull sutures are fusing too early (craniosynostosis). On Monday we have an appointment with a plastic surgeon. These are the same guys we had to see for Bobby's head, although we know his problems were more to due with his traumatic delivery. I am not going to lie, the thought of head surgery for Brogan makes me sick! My first thought was why us? Don't we have enough to deal with since Bobby has had 2 open heart surgeries and a third one slated for the summer? I was angry and bitter and feeling sorry for myself and our family. After prayer and reflection, I am working on a change of heart. We are a strong family, and with God on our side we can conquer everything! We are just going to take this one day at a time, and if it comes to surgery for Brogan, ultimately he is in God's hands and we will be there comforting him and helping him fight through. So, if you could just add these prayers to your lists, we would feel honored. If we do indeed have another battle in our future, we need your support along with our Heavenly Father's to get us through. Feel free to pass this along...any and all prayer chains are blessings.
Heart Hugs!
Rachael
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