The Weeks Family Update

As of Friday, May 14, Bobby was 8 weeks post-Fontan. I can't believe that it has already been 8 weeks. Today we visited the cardiologist. It has been 1 month since our last check-up. Where does the time go? The appointment went really well. I was pleasantly surprised when they put the pulse ox monitor on Bobby and he immediately came up as 96. Not only was his blood oxygen 96%, but it stayed there without budging. I kept waiting for it to get lower, but at one point it even went up to 97%. That is almost normal! This will be about as high as Bobby will get, but it a true miracle considering he has lived in the upper 70s to lower 80s for most of his life. He wouldn't let them check his blood pressure...surprise! He has grown a bit and is now 36 inches tall, but his weight is still down 3-4 lbs. He is sitting at 27lbs, although the doctor promises that his eating will pick up. They did a quick echo to check Bobby's heart and make sure there was no fluid or inflammation. He was NOT happy about this at all. Thankfully it was quick and everything looked clear. This allowed him to come off of the Motrin. For now his diuretics and the rest of his medicine will remain the same. We will have another check-up in 6 weeks when they may start to begin weaning some of the diuretics. I am anxious for him to be weaned from these things although it is important not to move too fast and cause another pleural effusion to develop (fluid in lungs). Bobby is about ready to be potty trained, but I don't think it can happen until he is off of some of these meds. He is definitely back to his old tricks-refusing naps again which says a lot!
We have decided to use a doctor in Dallas for Brogan's surgery for sagittal synostosis. He is a wonderful doctor. We have spoken through email and over the phone and he is the best surgeon for Brogan. The surgery he performs is less invasive and more successful (meaning that a second surgery would not be needed). It appears that this surgery will occur in July, but we are still waiting for a date. So much of our summer revolves around this and we are anxious for a date. John is enjoying his new job in Charlotte, but it is terribly hard to be apart. The end of the school year can’t get here fast enough!
That is all of the news from the Weeks household for now. We have some very special prayer requests tonight: Harrison, who is having his Fontan tomorrow; Jillian, who is having stomach complications; Rhyer and Noah, who are having surgery complications; all of our friends waiting for new hearts; and Bobby to eat better.
Heart Hugs!
Rachael